Champions are resourceful
Champions need support
Community can be helpful, especially when caring for someone with
such a complex disease. The following organizations below are here to help support you and your child.
Reach out—you're not alone.
The GFPD funds and promotes peroxisomal disorder research and
assists families and professionals through educational programs and support services related to
Zellweger spectrum disorders.
NORD is the leading organization committed to the identification,
treatment, and cure of rare disorders through programs of policy, advocacy, education, research, and
Global Genes works to eliminate the challenges of rare disease
faced by 350 million people worldwide, while unifying the rare community under a symbol of hope—the
Blue Denim Genes Ribbon®.
ChiLDReN is a collaborative team of doctors, nurses, research
coordinators, medical facilities, and patient support organizations working to advance understanding
of rare liver diseases.